Grace Weatherby
/ Categories: WELLNESS, 2024

Juvenile Arthritis: More Than Growing Pains

Juvenile arthritis (JA), also known as juvenile idiopathic arthritis, is a chronic autoimmune disorder that affects children under the age of 16. It causes inflammation in the joints, leading to swelling, stiffness, and pain. While the exact cause is unknown, it is believed to be triggered by a combination of genetic and environmental factors. However, there is no evidence that foods, toxins, allergies or lack of vitamins cause the disease.

Types of Juvenile Arthritis (JA)
Juvenile arthritis is an umbrella term for different types of juvenile arthritis, each with its own set of symptoms and characteristics:
1. Oligoarticular JA: This is the most common type, affecting four or fewer joints, typically the knees, ankles, or wrists. It can also cause eye inflammation (iritis) in some cases.
2. Polyarticular JA: This type affects five or more joints, often symmetrically on both sides of the body. It can also cause fever, rash, and anemia.
3. Systemic JA: Also known as Still's disease, this type affects the entire body, causing fever, rash, and inflammation in various organs, in addition to joint pain.
4. Enthesitis-related JA. Children with his type have arthritis as well as enthesitis. This is a swelling of the tissue where bone meets a tendon or ligament. It often affects the hips, knees, and feet.
5. Psoriatic arthritis. This type has both arthritis and a red, scaly skin disease called psoriasis.  
6. Undifferentiated arthritis. This type may have symptoms of two or more types of JA, or symptoms that don’t match any type of JA.

 

Symptoms of JA can vary in severity and may come and go in cycles.

Common symptoms include:

► Inflammation of joints: Joints may appear red and swollen and may feel still and painful to move. Pain may be especially noticeable upon waking or holding one position for a long period of time. The pain often causes a child to have difficulty walking, including a potential limp.

► Skin rash: A rash is typically one of the first signs of JA. It may appear spotty, pale red, or pinkish salmon-colored and may be accompanied by spikes in fever and may last a few minutes to a few hours. It commonly appears on the chest, upper arms and upper thighs, although it can be found on other parts of the body (but rarely the face). 

► Eye issues: Eyes may appear red and feel dry and painful. Sensitivity to light and trouble focusing may also occur.

► Other symptoms: Extreme fatigue, loss of appetite, digestive issues (diarrhea and/or bloating), intermittent fever

There is no single definitive test for JA, and diagnosis is based on a combination of clinical findings, test results—including imaging and blood work, and the exclusion of other possible causes. 

Early and accurate diagnosis is crucial for initiating appropriate treatment and managing the condition effectively.

Treatment often includes:

► Medications: to reduce pain and inflammation

► Physical and Occupational Therapy: to improve joint function, strength, and flexibility, and assist with daily activities

► Exercise and Weight Management: to maintain a healthy weight, reduce strain on joints, and manage symptom

► Complementary Therapies: Techniques like heat/cold therapy, massage, acupuncture, and mind-body practices may be recommend for pain relief and to help with stress management

Your doctor may also recommend regular eye exams, which can detect eye inflammation early.

In addition to medical treatment, it's essential to provide emotional support and encourage children to participate in school, social, and physical activities as much as possible. Accommodations like assistive devices or special education plans may be necessary. With proper management, many children with juvenile arthritis can lead active, fulfilling lives.

As for the question that every parent asks: “Does juvenile arthritis ever go away?”

The answer is “sometimes.”

For some children, JA goes into remission only to come back months to years later. For others it can go into permanent remission. It is difficult to predict the course of JA, however, advances in the treatment and monitoring of JA have improved the overall prognosis for all children.

 

Jaclyn Lozier, MD, FAAP, is the Chair of Pediatrics, Southwestern Vermont Medical Center and the Medical Director, SVMC Pediatrics.

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Interview with Jeff Silverman: 3D Printer

Jeff Silverman is a Wilmington native, a volunteer firefighter, and a business owner. From an addition to his Whitingham, Vermont, farm house, his company, Inertia Unlimited, develops camera technology for broadcast television.

"We make them out of thin air," he says.

Actually, he uses a 3D printer to make prototypes and one-of-a-kind cameras for very specific purposes, including those that sit in the dirt in front of a batter during Major League Baseball games and the ones built into NASCAR racetracks.

Over the course of the COVID-19 pandemic, Jeff has printed 463 face shields for first responders in the Deerfield Valley and healthcare workers at Southwestern Vermont Medical Center and other places. He has delivered them free of charge.

When and how did you first become interested in printing shields for first responders? In one day, every job we had disappeared. We went from having 20 – 30 jobs to zero in one day. Our first thought was that we would use the materials and talent we typically use to sew the pouches for our cameras to make masks. But we quickly found that the proper materials and techniques were not available to make effective masks. Plus so many other people were making them. They had it covered.

On Sunday, March 22, I read in the New York Times that a company in Syracuse, NY, had made a design to 3D print face shields available online. By noon that day I was printing. Since then the printer has not stopped.

How does it work? The printer converts the design into a 3D object using filament that is the width of a human hair, adding layer by layer. The printer takes 2 hours to print one shield. I have produced 380 shields so far. That's 1000 hours of printing. I take from midnight to 5 a.m. off. We've done more 3D printing in the last month and a half than we had in the previous 5 years.

Describe the shields. It was important to me to produce something that was good quality. Sometimes the ones you buy don’t clean up very well. These can survive UV light and other sterilization. They are rough and tough.

Where have you distributed them? First I gave them to the firefighters in Wilmington and Whitingham, where I am a volunteer. Then I gave some to the Deerfield Valley Rescue. I have sent 324 to Southwestern Vermont Health Care, some to SVMC Deerfield Valley Campus; Golden Cross Ambulance Service and Sojourns Community Clinic, both in Westminster, VT; and Rescue Inc. in Brattleboro. I sent some to a dentist in Portland, ME, who asked, and 10 to North Central Bronx Hospital to a friend who works there.

What's your greatest accomplishment? I went to Wilmington High School in the late 70s, and Dave Larson, who was the social studies teacher and former longtime VT state representative, had a video camera. He let me borrow it to film field hockey games. At the end of the season, they gave me a varsity letter for my film work. I have won Emmys since, but that varsity letter is special, because it represented the beginning.

What's next? We look forward to reopening. For us, it's the easiest thing in the world. No client ever comes here. We didn't lay anybody off. We hired locals. All are full-time with benefits. We think Vermont is a great place for low-impact companies like ours, and we hope more companies discover Vermont and come here to provide well-paid jobs.

And I am really looking forward to turning the printer off.

On behalf of Southwestern Vermont Health Care's frontline staff, thank you to Jeff for his tireless efforts to provide vital equipment to our teams. We appreciate it!

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